Today was a good day. Mulu, our nurse for today, a wonderful man from Ethiopia, came in right at 7 AM and turned all Corey's sedatives off. He knew the goal for today was to make even more progress toward waking Corey up and getting him to breathe on his own. He was on board … Continue reading One Step Closer

Friday felt like what I'll call an emotional hangover. It was around 2 AM before I finally closed me eyes and nodded off a bit, on the promise from our super sweet nurse Cici that she'd wake me if anything happened. After the emotional roller coaster of having the kids at the hospital and those … Continue reading Forward Progress = Flight of the Bumblebee

We left off with Wednesday being a transitional day and the ICU team working with Corey's oxygen levels, hoping they could try to wake him up and attempt some breathing trials. The began weaning his sedatives early Wednesday morning and began turning his oxygen down late morning/early afternoon to see how he would respond. He … Continue reading No Matter What

As much as I'd love to post that today has been a whopping success with major forward progress, that's not really the case. If I'm looking on the bright side, there was no backward progress, so I guess we'll call it a good day. Corey continues to be in a medically induced coma, although they've … Continue reading Stillness & Knowing

Well it's Monday morning and the sun is shining. We've got the shades open and are giving Corey a little Vitamin D Therapy today. I'll admit I'm soaking it up too. Sunday was most definitely a quieter day than Saturday, and Corey looked infinitely more peaceful throughout the day and night than he did after … Continue reading Monday Morning: Music & Movement

To say the past 48 hours have been a roller coaster would be a pretty serious understatement. I left off at how Corey was doing Friday, after "pulling through" Thursday night, which we didn't expect him to do. Friday was a much better day than Thursday and we both got a pretty good night's sleep … Continue reading The Scare & The Miracle: Part 2

Well, shoot. I've been meaning to post for a few weeks, but it kept getting pushed back and pushed back and now I have a whopper of a post coming (probably 2-3 posts worth. Sorry!!!) and it's not what I meant to post! What I meant to post was that all was trucking along nicely. … Continue reading The Scare & The Miracle: Part 1

It's March 1. Today marks one year since Corey was given the initial diagnosis of cancer.  In some ways it seems like only a month has passed. In others, it seems like a decade. I've become fluent in a language and adept at reading test results I never thought would be a part of my world. … Continue reading Season 2, Episode 1

I've been sitting here for a while, wondering where to start. Thankfully the Olympics are on (on mute) so at least I have something to alternate looking at, other than just a white screen and blinking cursor. I totally geek out on the Olympics. I watch every bit of them that I can, even the … Continue reading A Blinking Cursor & Choices

Well Happy New Year! I know, I know, we're already three weeks in to it, but I've been MIA (on here at least) so Happy New Year to you and yours. I hope it's starting out to be a spectacular year for you all. It's hard to believe, but we're 80 days post-transplant. In some … Continue reading Hey Look! A Forest!